Current health conditions (At least the most problematic ones)
Chest pains and heart disease issues) - Continuing as in the past, but increasing in frequency. I was diagnosed with heart disease unspecified in 2016, and prescribed Nitrostat for the chest pains. Then I switched to Independence Blue Cross, in the last 9 years I have not been able to access a cardiologist at all. I do believe I have developed congestive heart failure, I recognize it as my father had it. When I lay down my lungs fill with fluid. I purchased a special bed so that I can sleep sitting up. Sometimes I need to stand any way due to my leg and muscle issues. My blood pressure is continually elevated beyond appropriate levels, I believe there's a need for Concentrated oxygen, I have difficulty walking up stairs. Fortunately, my 91 year old mother has a chairlift on both floors, so I can use it to get around.
Infection - My blood is infected, my bones are infected, my teeth are infected. My skin is infected. Both my ears are infected. The infection between my mouth and ears is such that I'm unable to determine where one ends in the other begins. In addition, the infection seems to have gone up farther into my head beyond the ear section. I have an open infected wound on my foot. It wheezes blood and pus consistently, despite the fact that I spray it with hydrogen peroxide every day. The carpets in my home have blood stains all over them. And since I've already been bleeding from my head for years, it helps make our home look like a crime scene.
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Freys syndrome - I sweat when I eat. It started when I was denied insulin for the first 10 months by IBX as not medically necessary for the first 10 months, And continued on for the next five years before I discovered I could buy insulin at Walmart. But the damage had already been done. I'm not really able to control blood sugar precisely, Since it's 70/30 mix, without a continuous glucose meter, and the progression of the illness is intensifying. Frey syndrome is a nerve damage issue in which the nerves within your head get cross-linked with your sweat glands. In a nutshell, any salivation is presented as sweat from the upper head and forehead. So I can even think about foods I enjoy and start sweating from my head profusely. I cannot be amongst other people and eat food I enjoy. Any occasion I go to I hear the phrase "are you okay?" A work around is to eat foods that you don't like at all, I can eat certain foods without sweating., but since I enjoy food so much, the choices are limited. Keep me away from provolone cheese or hot wings at your next event, they can produce the most aggressive reaction.
Muscle issues - I've had a long-standing issue of muscle seizures. They generally happen at night, mostly isolated to legs and feet. The closest comparison is a "Charley Horse", but the intensity and frequency are greater. Seizures can occur in the knee, which is particularly unusual and painful. And sometimes, both knees can have seizures at the same time. Also, now I am experiencing issues during the daytime. These ones sometimes include my hands or muscles in my torso area.
Bleeding - I am constantly bleeding from my skin, nose, and infected foot wound.
There are other symptoms as well, I don't want to be a "Karen". These are enough symptoms to complain about to get a Pennsylvania disabled drivers placard. Having a handicap placard wood help me get my family's wheelchairs and walkers wheelchairs and Walkers out of the car and into the building without becoming fatigued and running out of breath.
I humbly pray that a disability lawyer will be able to send me to their cardiologist, who will determine that I am more than qualified for the placard. I'd prefer not to go on actual disability if possible. I enjoy working, I still have some earning power. If I go on disability I will not have enough income to keep the family together. With access to a minimal amount of healthcare I probably can continue for a while.
The self treatment has been difficult, but I learn as I go along. I currently am actively managing the following:
I have managed all by medical issues of a do-it-yourself basis. Do it yourself:
- Diabetes
- Diabetic macular edema (DME)
- Heart Disease
- Extreme neuropathy
- Neurological Disorder
- Coronovirus (7 or 8 possible infections) *
- Frey's syndrome *
Other names for Frey’s syndrome include:
Auriculotemporal nerve syndrome.
Gustatory sweating.
Gustatory hyperhidrosis.
Baillarger’s syndrome.
Dupuy syndrome.
I didn't know what it was at first. I thought it was certain foods causing me to sweat. As it's progressed, it became very pronounced. I can sweat profusely, by simply sitting in one position and eating food. I mean sweat rundown your forehead sweating, clothes soaking sweating, looks like I just ran the Broad Street Run sweating, without making a move other then chew. It is very socially isolating. I cannot attend a function where food is served without hearing the phrase "Are you okay?"
I can prove the condition is real. Please come back to this page soon, I am preparing video that will conclusively demonstrate this disorder and the on-command sweating. Frey’s syndrome is the result of severe nerve damage.
- Skin issues *
- Congestive heart failure *
- Anxiety *
- Depression *
* Self diagnosed
These are only the more extreme items in the list. I am seeking reasonably priced medical providers, who do not accept insurance from Independence Blue Cross, whom I could pay directly for treatment of these issues.
All these are extreme and ever increasing. When I hopefully someday testify against Independence Blue Cross before a congressional committee, I'd like to testify that the most difficult self treatment was mental health treatment. How could I possibly seek treatment via a company who is capable of taking the diagnosis information and weaponizing it against me? In our society, far too often, we learn of dramatic news events in which an individual with mental health issues, who has been denied access to care, has acted inappropriately and aggressively. Innocent people are needlessly injured and killed, families are destroyed. I want to testify that in denying access to mental health care, Independence Blue Cross is soliciting such an event. Personally, I had great difficulty in reconciling the various forms of rage, anger, depression, and disappointment caused by the fact that I cannot safely access health care without a legal threat.
How do I cope?
Music therapy - I enjoy just about every type of music you can name, and very knowledgeable about it, and have even begun to play a little.
Pet therapy - I share the love of two small dogs.
My family - The care that I provide for two handicapped people is a love beyond compare.
This website - Although Independence Blue Cross continues to be a barrier to my closure on this issue, I will receive closure anyway by educating the public, and causing change by peacefully encouraging our legislators to dismantle this industry as we know it.
Ever since the yet-unexplained attack, I have not have access to healthcare without risk. My family and I cannot suffer another legal attack.
What do I need now?
In the past, my health was managed better in large part to medicines. I seek access to medicines I routinely took prior to starting Blue Cross Insurance. I do not seek any assistance in paying for the drugs, I will pay them for them myself 100 % out-of-pocket. I only seek access to the prescriptions. Access to these three medications would be a game changer.